hi ladies. Entering the labour ward, I waited for someone to say, "Go home, you are 16 weeks too early." And I thought that if I were faced with the possibility of having an amnio, hours of discussion would follow - I would spend days mulling it over. So obviously quite relaxed. I felt empty, scared, guilty and incredibly heartbroken. The consultant had said it wouldn't be like a normal delivery. But here I was, minutes later, lying down, waiting. The doctor gave her consent, and I took the four little tablets. So we left it there, and we didn't actually think that there was anything really to worry about after that scan. He started to scan me with a cold expression, then told me, "it didn't look good" and that "my womb looked raggedy". He wanted to talk about it, but I didn't. So choroid plexus cysts on their own, no problem, but if there's something else wrong, then that's a problem. You have rejected additional cookies. This was a ray of hope for us. And I'm glad I did and she's glad she didn't. He had to come to the decision by himself. Maybe. Very occasionally this second scan cannot be completed, for example because: In this case you will not be offered another screening scan but you will offered an all over physical examination for your baby after birth. And so, yeah we got to, carried on with the pregnancy, kept seeing the consultant, kept sitting in the waiting room outside, because there was a terribly long waiting time sometimes, depending on what time you had the appointment. My heart goes out to you OP. I think it's the same - in fact I think it was probably the same room, same consultant - and [sighs] I suppose it felt upsetting because at the dating scan you're full of hope and this scan we knew wasn't going to be good, we knew it was maybe the last time we would see the baby moving around. Please ask your hospital about this before your appointment. By my own hand, I had to end the pregnancy. And it was just a bit of a shock because it's not really what you want to hear - you don't really expect that. At first, I still had to deal with the physical implications of having given birth. It was sick. As I left the room to compose myself. Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. Then I picked myself up. And the doctor - because it was a doctor rather then just the, a sonographer or whatever the correct term is - was scanning my wife, and she hovered over the heart of the baby and said, 'Oh there's the heart, we'll come back to that'. The scan can provide information that may mean you have to make further, important decisions. We needed closure, to allow us to grieve properly. On the next shift, the new midwife asked us again. My belly was growing and I was feeling great. It would be a personal tragedy for my partner and me, but that is all. It doesn't remove the guilt, but I don't know what else to do. He sounded like a wild animal in pain, deep pain. I was wondering if anyone has been is this situation and can give me a glimmer of hope. In some cases concerns in utero fix themselves sometimes needs treatment. . Likely to have serious medical problems all his life. Eventually, the midwife said to us very sweetly, "I think we should deliver the baby now." Just that really! Sam followed and I broke down. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here). The pain was bearable but uncomfortable, the hospital rang me a few days later and asked me how I was. And they took us out of the scanning room, into a more quiet room while they typed up the report. In a small number of cases some very serious conditions are found. My partner's face was lit up, seeing the baby for the first time. And I could see, before she even said anything I could see that there was something wrong with the heart. Anyway we went in for the meeting with the consultant on this particular time, and we'd got to, I was 30 weeks pregnant by then. And so we had to go out a couple of times, [wife] had to walk around, and she had a drink of water, which is supposed to sort of change things inside, or help the baby turn around or something because the sonographer couldn't get the measurements she wanted. So I no longer trusted my instincts. They said the brain was okay -, We were in there for a matter of minutes, literally -, In and out. Then, three days later, I would go to the labour ward - the ward I had been expecting to visit in two and a half months. Tommys is a registered charity in England and Wales (1060508) and Scotland (SC039280). I felt I needed proof of what was wrong before I take such a huge decision and that I couldn't do it based on what someone had written on, on the paper. Can you remember that minute. She didn't want to see the baby. The termination would be averting a tragedy. We were bound to each other because of the blood that was on both our hands. This time, they discovered the baby has a two vessel cord (only one vessel from placenta to baby instead of two) and I've been monitored to make sure the baby grows properly and kidneys aren't damaged. 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. I was saving my child from pain and suffering. We talked about the different sorts of pain relief I could have and I opted for a morphine drip, which I could control. There, I would give birth. The people who did know what was going on seemed far too sure that we were doing the right thing, that there was really no choice to be made. We left for home feeling completely numb. We were told to go to the hospital immediately. So that was it. The first words I said were: "If there's anything wrong then it's my fault", I had been working 70, nearly 80 hours the previous weeks and pushed myself hard. An appointment should be arranged as soon as possible and ideally within three working days. This short video explains screening for 11 physical conditions in pregnancy. For five months my body had known there was something wrong, yet I had felt fantastic. Spina bifida can usually be seen clearly on a scan and of those babies who have this condition, around 9 out of 10 (90%) will be detected. I came back probably about 17 weeks pregnant and had the anomaly scan at 20 weeks and like most people expected everything to be fine and to come away with a lovely picture but unfortunately that isn't what happened. Everywhere you look, there are happy, fat, smug pregnant women. I was sat on the sofa working, my son was at nursery and my partner was in the bath. Our baby was beautiful. The sonographer will be able to tell you the results of the scan at the time. Well send you a link to a feedback form. Though the 18-20 week scan can detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan alone. For example, the babys brain, kidneys, internal organs or bones may not have developed properly. So she said, 'Come back on Monday. Desperately trying to hold onto the glimmer of hope we'd been given. He then told us what the prognosis would mean for the child. I had to wait for a doctor to explain the situation. Within two days I was waiting in my local EPU unit for further tests. It seemed inconceivable that we would not be having a baby in May. He looked excited. You will then be asked to raise your top to your chest and lower your skirt or trousers to your hips. 'Yes, if that's okay with you,' kind of thing, like you do. And everybody knows and everything is right. Next most likely (but actually in the minority) they identify something which whilst not 100% healthy is treatable. Thick milky discharge at 14 weeks.tmi pic attached. It is a noise that will stay with me for ever. So we went home, me to rest in an attempt to prevent miscarriage, my partner to reassure us both. Christmas came and went in a blur of emotion, it felt so wrong to be celebrating when we were in such turmoil. We're going to go and see them. As I lay down, and the sonographer started, I could see there was something wrong. The scan yet again confirmed things were not good, however the sac had grown. Immediately I knew what decision we should take. He's now had the all clear and is wriggling round on . So I was, they couldn't actually finish the scan then, the baby was moving around too much, so they couldn't scan the heart and the stomach. Find more information and details of support groups on NHS.UK. He started to scan me with a cold expression, then told me, 'it didn't look good' and that 'my womb looked raggedy'. Back on the EPU unit, a doctor organised for me to be admitted into the ward, to take the medical management under supervision as the sac was now to big for me to safely miscarry on my own at home. We're still not at the end of our journey, but we're much further along. Many described how sonographers and doctors were very restrained and didn't speak at all until they had analysed all the baby's details. Is it the same scan or is it the same equipment? I then had to wait in the room along with many other patients for an hour so they could observe me. And with each one we had to have the same conversations. That he was small. The 18-20 week antenatal scan and further tests. She endured many agonising rounds of scans and tests, and unfortunately met with some unhelpful attitudes from some healthcare professionals. We thought it would all be over very quickly but, in fact, it was another 11 hours before the baby was delivered. Could you tell? But it's bloody hard being miserable the whole time. Instinctively, did it feel right? The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). We've joined the grown-ups and we both feel very different. x. We spent the next few weeks in a happy bubble. So I suppose from that aspect, mind you having not been told that or sitting there, I wouldn't have thought necessarily that was odd. But I was struggling mentally with the anguish, grief and endless hospital visits. All women are offered a dating scan, and an 18- 20 week fetal anomaly ultrasound scan, in line with NICE and UK National Screening Committee recommendations. I didn't think my instincts were worth much. But before he could speak, he, too, had broken down. Wishing to be anywhere, but here being told the same agonising truth over and over again. We'd just spent some time away on a, on a summer holiday and come back expecting to have this scan and be told, 'All fine. And so this one can't tell you anything, it's pictures, you're going, you're going to see your baby, you're going to get pictures. . blood tests, CVS) were clear - and as one woman put it, 'after the triple test* (Down's syndrome screening) you stop thinking anything can go wrong'. That's fine. We had to discuss what we wanted to do with the little body after delivery. And I couldn't escape the feeling that I was being selfish. I didn't really know what that was. No, you couldn't see there was anything wrong. My partner really wanted me to, and by that time I had no sense of what was right or what I should do. And there [sighs] was a very dark patch over one, where the eye socket was, and they didn't know it, in the Edward's babies sometimes the eyes don't develop properly, or it might have been bleeding, they weren't very sure. All pregnant women should be given the booklet by their midwife or GP Screening tests for you and your baby by Public Health England, which gives detailed information about the types of scan offered and what they are looking for. Nights were impossible. So even if anomolies are found, they don't always mean a problem.. x. I had issues at the 20 weeks scan with both of mine. But he was not sure. It's part of our family. If you are offered further tests, you will be given more information about them so that you can decide whether or not you want to have them. Never being able to look after himself. By the time I left the hospital, I was in shock. For instance a couple who knew their baby was 'on the small size' were told he was fine at the 18-20 week scan, but discovered at 32 weeks that he had microcephaly. I know it sounds odd that you want to hear that it's wrong, but you, you know it's wrong, and you, you want to be reassured either that it's okay or is there something seriously wrong. Sometimes women were told that the sonographer had found a 'marker' or sign of a chromosomal condition and had to wait for an amniocentesis to confirm the findings. We don't know, but it's not looking good'. And then all of a sudden, I was still laughing and we were all very upbeat, and then suddenly, he suddenly said, but I was still, still laughing, and he said to me, 'Oh, there might be a problem, there might be a problem with the, I think this baby has hydrocephalus'. Having the scan does not hurt but the sonographer may need to apply slight pressure to get the best views of your baby. Sometimes a post mortem was needed to confirm the 20-week diagnosis to see if the baby had inherited a genetic problem (such as Fowler syndrome - see 'Resources'). By this point I had stopped bleeding, this caused problems. This publication is available at https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby/11-physical-conditions-20-week-scan. Many parents were shocked by findings from the 20-week and later scans. I faced another internal scan where I began to feel helpless and alone. So we went back the day after Boxing Day, the 27th, and the consultant greeted us, which made my alarm bells go, and she started scanning us and I think her lines were, 'What concerns me about this baby is that they've got a diaphragmatic hernia, which has meant that part of the stomach of the baby was in its chest cavity.'. . I tried to show him the notes and the photos. And nothing prepares you at all. I felt sad, but not the complete devastation of the last scan as they had seen a change of some sort. But at the 20 week scan, which was on a Wednesday, we saw the nurse at the local hospital, the sonographer, and she did a scan and she found that the femur length was quite short in the, in the fetus. We saw the consultant, who was reassuring, saying that he would rescan me and was sure everything would be fine. I want to be happy again. When I think about how long it took them to deliberate ultimately, maybe not, but it just felt like a bit of a fast food situation, didn't it? I tried not to sit still for too long, because then I became too aware of the little thing inside me. And then I can't remember an awful lot more about that scan apart from that feeling of searching of how to react in an unknown situation - your brain's kind of trying to work out what to say, what to do, but I had no idea what to say or what to do and I think my first thought was, does that mean our first daughter's okay? 26/09/2019 22:46. Has anyone been told the wrong sex at 20 week scan? Several women had taken young children with them to the 20-week scan because they expected to see 'nice pictures of the baby'. My partner tried to remain calm, and at my request rang my mum. I wasn't ready to make a decision straight away, and I was told I could call them in the morning. The nursery I had selected for our two-year-old son; my maternity leave; the bunk beds; the summer holiday suitable for a newborn baby. Laura miscarried her twin babies in February. No one else felt him kick. I had no idea if we were doing the "right" thing. It felt like a lifetime to reach our 12-week-scan. The gel makes sure there is good contact between the probe and your skin. Our nightmare began when I went for my 20-week scan. And of course some other measurements she needed to take like the width of the skull, which she couldn't take because the fetus was in the wrong position. For once in my life, I had been organised. And she sort of got up and walked out of the room and called someone in. Picture every packed football staduim up and down the country - all healthy pregnancies and births. Your mind has closed to the possibility that there could be anything wrong. chances of bad news at 20 week scan mumsnet. Most hospitals do not allow children to attend scans as childcare is not usually available. I took my vitamins, stuck to the healthy diet and put on a brave face. The consultant at the time wasn't really that interested in that imagery. Instead, I had to raise a glass of water to my mouth, take a swig and swallow the tablet. Apologise for somehow doubting their right to be in this world. I couldn't really believe what they were saying. See more information about the 20-week ultrasound scan. By 7pm, I still hadn't delivered the baby. I went away and came back, and she couldn't get a good picture. They sort of drew some diagrams, and they said, 'But we need to refer you to a specialist to confirm the diagnosis'. The doctor told me he was 98% sure this was a failing twin pregnancy. Living in this world must be unbearable for them. But you could see there was something wrong? Wed like to set additional cookies to understand how you use GOV.UK, remember your settings and improve government services. I was told this was common as my body and hormones still thought I was pregnant. We use some essential cookies to make this website work. And I, and, I felt the weight of deciding what to do about it. Did you, how did that scan make you feel? So had to come back in a week's time for a scan, which again is quite a common thing I found out. You will be able to discuss this with your midwife or consultant. No, we really didn't, with hindsight we probably should have, but not at all, it never occurred to us to be worried about it. I can't remember the exact words but she said, 'There might be some fatal problems with your baby'. To comment on this thread you need to create a Mumsnet account. I'm trying to understand because I haven't seen a 3-D scan, what it tells the parents? I felt crushed, I wanted him to at least acknowledge what had been found already. What would we like to do with the body? I had my little leaflet, printed off leaflet about choroid plexus cysts. I didn't want to be convincing him to agree with me. She advised I be referred to the EPU to be assessed. The "why me?" I'd had the scan in the scanning room, I can't remember what they call it now, it's silly, it's gone from my head. But she told us, she told us, she gave us some more detail, she said, 'There's this, there's a big gap in the brain where there shouldn't be'. I thought surely everything is ok, as they couldn't detect twins the week before. So we gave up and said we'd arrange the funeral ourselves. You're in and out and that was it. I wrote a few things down last night when we were trying to go over things, just to remind myself. I remember thinking, 'Gosh' I now know it was a girl, I didn't know that then, that, 'She looks just like her brother'. The hardest thing I have ever done. Sometimes it is difficult to get good views of a baby. It was a bit worrying but on the plus side I got an extra couple of scans and an extra couple of pictures. And how wrong could they be? I returned to be told they wanted to scan me again, another internal to see exactly what was happening. With my oldest it turns out she has a minor thing that affects 1 in 1000 of the population and wont harm her at all it's just "there" and with my second the issue turned out to be nothing. In the case of a suspected abnormality, women should be seen for a second opinion by an expert in fetal ultrasound, such as a fetal medicine specialist. So instead, I was advised to go home and let nature take its course. That was the first time I had heard him cry. Again the legs were quite twisted, they said that the baby's sternum was very short - things weren't in proportion you know - the head was quite large, the neck was very thick, there wasn't really like a neck as such it was just things were kind of - there were lots of things that obviously the consultant could see that we weren't aware of. But with time although we will never forget, I know we will be ok again. I think at that time she had come to terms better with the fact that this baby was going to be terminated, and I don't think I was quite there. Some hospitals do offer earlier anomaly scans of the baby, but they will not show as much detail as scans performed between 18 and 20weeks. Impact of the 20-week and later specialist scans I have horrible thoughts. The blood test confirmed it was twins. 10/03/2021 16:13, @Cormoransjacket I get terribly irritated by my close friends and family. And my partner and I would have a completely different life from the one we'd imagined. The same rush of excitement. The doctor wanted to do another blood test to confirm a significant drop in my hormone levels. The same anticipation. Which is what I'd seen. The baby was very, very small. After she had taken all the measurements, the sonographer told us that she was concerned with the length of the baby's limbs in relation to the head. He was sure the consultant on Monday would see that the measurements were completely normal and that there was nothing to worry about. Why me and not you, you bastard? And you could see, where you should have a picture of 4 chambers, you could really see 2. Again, no notes can have been written down because the midwife asked the same question. I ran into the bedroom to tell Sam, who was ecstatic. The 18-20 week antenatal scan and further tests, Ending the pregnancy for family & personal reasons, Deciding whether to see, hold and name the baby, Photographs and other mementoes of the baby, Saying goodbye to the baby - services & funerals, Coping with bereavement - women's experiences, Coping with bereavement - men's experiences, Men's ideas about their role in ending a pregnancy. We went in, had a scan, I can't remember the exact sequence of events because the baby was still in the wrong position. And that was extraordinary to see the detail that that could offer. Some say this estimate is really below the reality, and the out-of-pocket average costs are higher. When I see a child with Down's syndrome, I have a tremendous need to explain myself and apologise a million times over. It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to have significant emotional impact. I did think it was a bit strange that she wasn't talking, and then she sort of said, 'Oh, I think there's a problem. And that was Monday afternoon. I was booked back in to discuss management options, if nothing had happened. However painful and traumatic the labour was, it was better than what would happen at the end of it. I had hope that the little bumps inside me were fighting just as much as I was to stay with me. There was a very marked lack of amniotic fluid which made it difficult, not even for the scanners to see, that made the picture of the scan look very, very different. I sat and waited to be called for my scan. We couldn't say we'd lost the baby, because he was still kicking away, but we couldn't pretend everything was fine, either. So we hid in our house. So I was a bit ignorant of the kind of things, you know, what the scans were really doing - maybe it was, a bit na've I think. He was tiny, perfect and a Down's syndrome baby. This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. Life expectancy of 30 or 40. Unfortunately I was not met with a compassionate sonographer. You have accepted additional cookies. How common is it for 2nd baby to come early..? And attribute some blame to them. It was another consultant, who said, "I'm afraid I have some bad news - your baby has Down's syndrome." Surely he couldn't have missed anything else that is so serious x. She describes having to make a . And that, that was when things where it started going a bit wrong. Read full disclaimer. And I wish that I'd been told at that point, that somebody had actually turned round to me and said, 'Look, I'm sorry, but I think there's something very wrong. It is also sometimes referred to as the mid-pregnancy scan . So we decided to book an early 10 week private scan. What were babys measurements at 20 week scan? We didn't feel we could tell anyone what was happening. Have I misunderstood what's going on?' Rather sharply, my partner tried to explain. We didn't name him. Can't seem to find info on the Internet. Many parents were shocked by findings from the 20-week and later scans. And, for a few hours, I'm convinced I've made a terrible mistake. It wasn't measuring at all the right measurements for the age - there was a heart defect, the limbs were sort of distorted, the arms were, you know - you could see that the arms were very sort of contracted, the hands were contracted. The sonographer then passes a hand-held probe over your skin to examine the babys body. Others, including those who had been given leaflets to read about the scan beforehand as well as some who were health professionals, said that they had been nave about the 20-week scan. But it was very evident. You do not have to have the scan. Originally I hadn't wanted to go down that road.
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